Links to Amazon on this blog are affiliate links*

Trisomy 13

This page is in honor of April Rey. April Rey was diagnosed with trisomy 13 when I was 15 weeks pregnant. I’ll be documenting our journey on this page.

Links to Amazon on this blog are affiliate links*

This trisomy 13 blog page is in honor of April Rey. April Rey was diagnosed with trisomy 13 when I was 15 weeks pregnant. I’ll be documenting our journey on this page.

Trisomy 13 on the blog

Our Journey with April Rey and trisomy 13

Baby V #2 Update 15 Weeks- The Longest Wait of Our Lives

Trisomy 13 – The Day After Our Heartbreaking News

Genetic Counselor Questions Asked and Answered

Trisomy 13- Why Would I Ever Consider Not Fighting the Fight?

Trisomy 13- Getting More Information & Our Plan Moving Forward

My Worst Fear That I HATE Admitting 

Trisomy 13- April Rey’s 17 Week Anatomy Scan

In Honor of April Rey- A Donation That Can Save Lives

Click to donate in April’s honor. 100% of proceeds go direction to St. Jude.

Our Visit to Hopkins Fetal Therapy Group

One Week Until Induction day

Helpful Things to Say to a Parent Walking This Path- Grief & Trisomy 13

April’s Birth and Death Announcement 8/8/17

Induction Day 1- Taking the Pill

April Rey- The Girl Who Changed My Life // A Note From Our Photographer

A Note From My Mom About Leaving the Hospital

April Rey’s Birth Story

A Tattoo in Honor of April Rey

Donation to Johns Hopkins in memory of April Rey

100% of proceeds go to the perinatal palliative care program at Johns Hopkins. Thank you for any and all donations!

After The Fact- How We Feel About Our Decision to Induce Early and Terminate the Pregnancy

I Didn’t Come Home With a Baby, But I Still Gave Birth

If you are considering induction/early termination and want a safe space to talk about your options, or perhaps you’ve already induced and lost your baby, please join this Facebook group that I’ve created to be that support group and safe space. 

Dear April Rey –(From Auntie Maria and Uncle Adolfo)

“You Just Have The One [Child]?”

Dear April Rey- Today Marks One Month

One of My Daughters Doesn’t Get to Grow Up, and the Other is Growing Up So Fast

Pro-life or Pro-choice? Did April’s Story Make You Change Your View? Think About New Circumstances?

On the Sideline of Grief

Toddler Sleep Disruptions During a Family Crisis

Behavioral and Sleep Changes that Occurred with our Older Daughter

A Tree for April

Grieving Our Daughter- No One Knows How to Navigate the Storm for Themselves

Helpful Things to Say and Do if Your Friend Has an Unborn Baby With a Terminal Condition

2 Books to Help Your Toddler Get Through the Loss of a Baby

Am I Going to Die On My Birthday?

Family Trip to the Beach (Ocean City, MD) Winter 2017 (Dealing with my grief)

A Due Date To Remember- Dear April Rey

Trisomy 13 Research Project

When Our Daughter Was Given a Death Sentence, We Were Given a “Choice”

A Special Thanks to All of the Wonderful People at Hopkins

Printable Birth Plan for Early Induction/Medical Termination

The Day I Gave In To My Grief- And Served Ice Cream and Peach Cobbler For Breakfast

Memorial Service- Maryland State Anatomy Board

Pregnancy After Loss- A Rainbow Baby

Dear April Rey, On What Would Have Been Your First Birthday

I KNEW I’d Never Get An Abortion, But Life Had Other Plans

“I Have a Sister. She’s Dead.”

Please also see the sister page to this –> termination of pregnancy for medical reasons

For even more stories and resources.